Treatment Outcomes of Quality of life and Nasolabial Appearance in Patients with Cleft Lip and Palate of 10-Year-Old Group
Keywords:
Cleft lip and Palate; Quality of life; Nasolabial appearance 4 dimensionsAbstract
Background and Objectives: Cleft lip and palate (CLP) requires a long term management from an interdisciplinary team since it affects the quality of life (QoL) and nasolabial appearance in patients during puberty.
Methodology: The descriptive studies in 10–year-old group of patients with CLP who received treatment care from Tawanchai Center, Srinagarind Hospital, during the Year 2017-19, a total of 30 cases. The tool was a five-aspect QoL questionnaire with39 items with a reliability of 0.94, photos of patients face in frontal and lateral sides to assess nasolabial appearance in 4 dimensions. The score of aesthetics rating scale of 5 levels from 5 raters was gathered. The data were analyzed by using percentage statistics, mean and standard deviation.
Results: It was found that 53.3% of the patients were male, 63.3 percent of the total UCLP. Most of the parents were primary caregivers and73.3 percent of the parents completed primary school. The family income per month was in the range of 5,001-10,000 baht (30percent). While the QoL in 5 aspects showed the satisfaction level as follows; the service was at the highest level (4.30 ± 0.98), medical treatment and expenses was at a high level (3.72 ± 1.15), (3.70 ± 1.14), the parents in the psychosocial dimension, and the impact on the family was moderate (3.33 ± 1.08), (2.81 ± 1.46). As for the nasolabial appearance most of them had a good average score 53.3 percent.
Conclusion: Most of the patients were male and had UCLP. Parents had 3 aspects of good to very good QoL and 2 moderate levels. Most of them had a good to average nasal appearance.
References
2. Patjanasoontorn N, Pradaubwong S, Rongbutsri S, Mongkholthawornchai S, Chowchuen B. Tawanchai Cleft Center quality of life outcomes: one of studies of patients with cleft lip and palate in Thailand and the Asia Pacific Region. J Med Assoc Thai 2012; 95(Suppl.11): S141-147.
3. Thohinung U, Prathanee B. Caregivers’ role in caring for children with cleft lip-palate in mobile speech camp. J Med Assoc Thai 2016; 99(Suppl.5): 21-28.
4. Pisek A, Pitiphat W, Chowchuen B, Pradubwong S. Oral health status and oral impacts on quality of life in early adolescent cleft patients. J Med Assoc Thai 2014; 97(Suppl.10): 7-16.
5. Damiano PC, Tyler MC, Romitti PA, Momany ET, Jones MP, Canady JW, et al. Health-related quality of life among preadolescent children with oral clefts: The mother's perspective. Pediatrics 2007; 120(2): e283-90.
6. Rod-ong D, Rongbudsri S, Maneeganondh S, Samretdee H, Pradubwong S, Patjanasoontorn N. Home and environment survey of children with CLP in Khon Kaen province. J Med Assoc Thai 2017; 100(Suppl.6): 76-83.
7. Mitkitti R, Prathanee B. Caregivers’ feedback after enrollment in the community-based speech therapy model. J Med Assoc Thai 2016; 99(Suppl.5): 29-35.
8. Al-Namankany A, Abrar A. Effects of cleft lip and palate on children's psychological health: A systematic review. J TaibahUniv Med Sci 2018; 13(4): 311–318.
9. Bernstein NR, Kapp K. Adolescents with cleft palate: Body-image and psychosocial problems. Psychosomatics 1981; 22(8): 697-703. doi: 10.1016/S0033-3182(81)73469-8.
10. Thomas PT, Turner SR, Rumsey N, Dowell T, Sandy JR. Satisfaction with facial appearance among subjects affected by a cleft. Cleft Palate Craniofac J 1997;34(3):226-31.
11. Parisanyodom S, Chimruang J, Worasakwutiphong S, Chowchuen B, Tansalarak R. Nasolabial esthetic evaluation in young adults with unilateral cleft lip and palate comparing among patients, laypersons, and healthcare professionals. J Med Assoc Thai 2017; 100 (Suppl.6): 84-93.
12. Paiva TS, Andre M, Paiva WS, Camara-Mattos BS. Aesthetic evaluation of the nasolabial region in children with unilateral cleft lip and palate comparing expert versus nonexperience health professionals. Biomed Res Int 2014; 2014: 460106. doi: 10.1155/2014/460106.
13. Nguyen VT, Nguyen T, Jagomägi T. Nasolabial aesthetics of patients with repaired unilateral cleft lip and palate: A comparison of three rating methods in two countries. J Craniomaxillofac Surg 2018; 46(8): 1385-1389.
14. Thittiwong R, Manosudprasit M, Wangsrimongkol T, Kongsomboon S, Pitiphat W, Chowchuen B, et al. Evaluation of facial appearance among patients with repaired unilateral cleft lip and palate: Comparison of patient- and clinician-ratings of satisfaction. J Med Assoc Thai 2015; 98(Suppl.7): 68-76.
15. Abdurrazaq TO, Micheal AO, Lanre AW, Olugbenga OM, Akin LL. Surgical outcome and complications following cleft lip and palate repair in a Teaching Hospital in Nigeria. Afr J Paediatr Surg 2013; 10(4): 345-57. doi: 10.4103/0189-6725.125447.
16. Patjanasoontorn N, Wongniyom K, Pradubwong S, Piyavhakul N, Chowchuen B. A relationship between nasolabial appearance and self-esteem in adolescent with repaired cleft lip and cleft palate at Khon Kaen University Cleft Center. J Med Assoc Thai 2014; 97 (Suppl.10): 49-52.
17. Mercado AM, Russell KA, Daskalogiannakis J, Hathaway RR, Semb G, Ozawa T, et al. The Americleft project: A proposed expanded nasolabial appearance yardstick for 5- to 7-year-old patients with complete unilateral cleft lip and palate (CUCLP). Cleft Palate Craniofac J2016; 53(1): 30-37.
18. Mosmuller DGM, Mennes LM, Prahl C, Kramer GJC, Disse MA, Couwelaar GM van, et al. The development of the cleft aesthetic rating scale: A new rating scale for the assessment of nasolabial appearance in complete unilateral cleft lip and palate patients. Cleft Palate Craniofac J 2017; 54(5): 555-561.doi: 10.1597/15-274.
19. Asher-McDade C, Roberts C, Shaw WC, Gallager C. Development of a method for rating nasolabial appearance in patients with clefts of the lip and palate. Cleft Palate Craniofac J1991; 28(4): 385-390.
20. Patjanasoontorn N, Pradaubwong S, Mongkolthawornchai S, Phetcharat T, Chowchuen B. Development and reliability of the THAICLEFT quality of life questionnaire for children with cleft lip/palate and families. J Med Assoc Thai 2010; 93(Suppl.4): 16-18.
21. Pradubwong S, Pongpagatip S, Winaikosol K, Jenwiteesuk K, Surakunprapha P, Chowchuen B. Treatment outcome of 4 to 7-year-old patients with cleft lip and cleft palate in Tawanchai Center, Srinagarind Hospital. J Med Assoc Thai 2019; 99(Suppl.5): 73-78.